top of page
74172929_10114691452288765_1461090050954493952_o.jpg

Sponsor

Thank you so much for your consideration of support of the Wiedemann-Steiner Syndrome Foundation International Family Conference. The event is scheduled for October 27 through October 29, 2022 in Ellicott City, Maryland. We would love to partner with your business. We have sponsorships available between $200 and $10,000. 

As an update on our sponsor and participant dollars at work, the WSS Foundation awarded its first major grant in 2020 to Dr. Hans Bjornsson of the University of Iceland in the amount of $200,000. Dr. Bjornsson set out to develop a mouse model and prove whether or not WSS is something that is malleable with treatment post-natally. Dr. Bjornsson has a few months left to provide his final findings; however, preliminary findings are indicative that treatment may be possible. This potential result is not only HUGE for the WSS community, but something that could have a significant impact on similar rare genetic diseases. As Dr. Bjornsson’s current project comes to a close, the Foundation is busy at work designing its research roadmap, which includes funding continued research, development of a natural history study, creating a patient registry where our patients can house their medical histories from across medical institutions, and completing cell line studies. These pieces are key components as the Foundation strives to gain a better understanding of WSS as a whole and as it moves towards development of FDA approved treatment options. While research is a huge component of the Foundation's efforts, especially financially, the Foundation is also continually working to support and educate those impacted by WSS. The Foundation does this through programs like onboarding newly diagnosed families in giving them direction on next steps to take and connecting them with resources, offering a Speaker’s Series featuring experts in areas of need for our families, and planning regional gatherings around the world, including its biennial international conference. These gatherings allow families an opportunity to be around those that “get it”, an experience un-paralleled by any other.

If you are interested in partnering with us as a sponsor, you may click on the "Sponsor" button below or mail a check made out to WSS Foundation to 1314 44th Street, Sacramento, CA 95819. Please also e-mail your logo to libby@wssfoundation.org Have questions, please contact Libby Woolford at 916-502-2120 or libby@wssfoundation.org

bottom of page