Conference Information

What you need to know...

The conference will run from Thursday, October 27 to Saturday, October 29, 2022 in Ellicott City, Maryland

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While a formal agenda is being developed, here are some timeframes to use as you plan for your attendance.

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Thursday, October 27

9:00-11:00 AM Family Gathering at Turf Valey Resort

12:00-4:00 PM Family Activity/Outing

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Friday, October 28

8:00-9:00 AM Breakfast

9:00 AM-12:00 PM Presentations

12:00-1:00 PM Lunch

1:00-5:00 PM Presentations

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Saturday, October 29

8:00-9:00 AM Breakfast

9:00 AM-12:00 PM Presentations

12:00-1:00 PM Lunch

1:00-4:00 PM Presentations

4:00-6:00 PM Closing Reception

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This is a loose framework and is subject to changes. Where presentations are listed above, that will be a combination of medical professionals, therapists, education advocates, parent panels, patient panels, and family networking sessions.

During the presentations, we will be offering some children's activities. During those activities, your child will be expected to be supervised by a parent, family member or caregiver.

There will be opportunities for socializing outside of what is listed. For example, in past years we have done a dad's night out and a mom's night out.  

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