Sponsor

Thank you so much for your consideration of support of the Wiedemann-Steiner Syndrome Foundation and its Quadrathlon. The 9th Annual WSS Foundation Kids Quadrathlon (formerly Triathlon) is scheduled for June 1, 2025 and we would love to partner with your business. We have sponsorships available between $150 and $5,000 and our financial goal for the 7th Annual WSS Foundation Kids Quadrathlon is to raise $30,000 for the Foundation. 

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Our donors dollars are hard at work. The Foundation awarded its first major grant in 2020 to Dr. Hans Bjornsson of the University of Iceland in the amount of $200,000. Dr. Bjornsson set out to develop a mouse model and prove whether Wiedemann-Steiner Syndrome is something that is malleable with treatment post-natally. Dr. Bjornsson and his brilliant med student Tinna Reynisdottir, have indeed proven that WSS can be treated after birth and improve the medical fragility of our patients along with intellectual disability. This potential result is not only HUGE for the WSS community, but something that could have a significant impact on similar rare genetic diseases. Last year, the Foundation funded a second cognitive profile study by Dr. Ng and Dr. Harris at Kennedy Krieger and laid the groundwork for positioning itself to be able to fund development of cell lines, a natural history study, and molecular genetics research come this year. Paired with the Foundation’s recently completed mouse model, these building blocks will create the necessary package for eventual WSS treatment development. We are at a pivotal time in the Foundation’s advancement and our donors are a key role in its momentum. While research is a huge component of the Foundation’s efforts, especially financially, the Foundation is also continually working to support and educate those impacted by WSS. The Foundation does this through programs like onboarding newly diagnosed families in giving them direction on next steps to take and connecting them with resources, offering a Speaker’s Series featuring experts in areas of need for our families, and planning regional gatherings around the world, including its biennial international conference. These gatherings allow families an opportunity to be around those that “get it”, an experience un-paralleled by any other. Please see the Foundation’s progress report for more information on the Foundation’s advancements and programming

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If you are interested in partnering with us as a sponsor, you may click on the "Sponsor" button below or mail a check made out to WSS Foundation to 1314 44th Street, Sacramento, CA 95819. Please also e-mail your logo to libby@wssfoundation.org Have questions, please contact Libby Woolford at 916-502-2120 or libby@wssfoundation.org

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